AGENDA & SPEAKERS

Welcome: Andrew, Balas, MD, PhD, Vice President, Friends of the NLM Board of Directors

Moderator:

Elaine Martin, DA, Director, The Francis A. Countway Library of Medicine, Harvard Medical School

Keynote

Lyric Jorgenson, PhD, Acting Associate Director for Science Policy & Acting Director of the Office of Science Policy at The National Institutes of Health

Dr. Jorgenson is the Acting Associate Director for Science Policy and the Acting Director of the Office of Science Policy at the NIH. In this position, she provides senior leadership in the development and oversight of cross-cutting biomedical research policies and programs considered to be of high-priority to NIH and the United States Government. Prior to this role, she served in numerous roles across the agency, including Deputy Director of the Office of Science Policy, and has led the development of numerous high impact science and policy initiatives such as the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative and the National Center for Advancing Translational Sciences (NCATS). Dr. Jorgenson also served as the Deputy Executive Director of the White House Cancer Moonshot Task Force in the Office of the Vice President in the Obama administration, where she directed and coordinated cancer-related activities across the Federal government and worked to leverage investments across sectors to dramatically accelerate progress in cancer prevention.

Dr. Jorgenson earned a doctorate degree from the Graduate Program for Neuroscience at the University of Minnesota-Twin Cities where she conducted research in neurodevelopment with a focus on learning and memory systems. She earned a Bachelor’s degree in Psychology from Denison University.

Keynote Q&A session

Panel:

Timing of Major Data Management Actions – Taunton Paine, MA, Director, Scientific Data Sharing Policy Division, Office of Science Policy, National Institutes of Health

Checklist of Data Management Plans – Peter Elkin, MD, MACP, FACMI, FNYAM, FAMIA, FIAHSI, University of Buffalo Distinguished Professor and Chair, Department of Biomedical Informatics.

Dr. Elkin has published over 200 peer reviewed publications and book chapters. He received his Bachelors of Science from Union College and his M.D. from New York Medical College. He did his NIH/NLM sponsored fellowship in Medical Informatics at Harvard Medical School and the Massachusetts General Hospital. Dr. Elkin has been working in Biomedical Informatics since 1981 and has been actively researching health big data science since 1987. Dr. Elkin is a Master of the American College of Physicians and a Fellow of the American College of Medical Informatics and a Fellow of the New York Academy of Medicine. He was awarded the Mayo Department of Medicine’s Laureate Award for 2005. Dr. Elkin is the index recipient of the Homer R. Warner award for outstanding contribution to the field of Medical Informatics. Dr. Elkin is an internationally renowned expert in knowledge representation, ontology, natural language processing and health IT standards. Dr. Elkin in 2018 received the Team Science Award from the National Center for Advancement of Translational Sciences and was elected an inaugural fellow of the American Medical Informatics Association for Clinical Informatics excellence and has been elected to the International Academy of Health Sciences Informatics. He serves on the NCATS Informatics Quality Metrics Committee. He publishes the Springer series Textbook on Ontology, Terminology and Terminological Systems.

Ethics of Data Management – Barbara Redman, PhD, MBE, Associate, Division of Medical Ethics, New York University Langone Medical Center & Senior Fellow, Ge2P2Global

Barbara K. Redman, PhD, MBE, RN, FAAN is Associate, Division of Medical Ethics, New York University School of Medicine and Courtesy Appointed Professor, NYU School of Nursing. She currently also serves as Senior Fellow of Ge2P2Global, a global consulting firm.

Dr. Redman has held academic appointments/deanships at: University of Washington, University of Minnesota, University of Colorado, Johns Hopkins University, University of Connecticut, and Wayne State University.  She has had fellowships at: VA Central Office (health policy and management of large health care systems), and in bioethics at Georgetown University’s Kennedy Institute of Ethics, Fellow in Medical Ethics at Harvard Medical School, and Senior Fellow, University of Pennsylvania Center for Bioethics.  Dr. Redman holds honorary doctorates from Georgetown University and from the University of Colorado.

Dr. Redman’s focus is on research integrity.

Library Support – Philip Walker, MLIS, MS, Director, Annette and Irwin Eskind Family Biomedical Library and Learning Center, Vanderbilt University

Mr. Walker previously worked at Tulane University’s Rudolph Matas Library of the Health Sciences. His research interests include the information needs and information seeking behavior of the health sciences community, biomedical and nursing informatics, knowledge translation, evidence-based practice, and information ecology. Philip earned a master’s in library and information science from Louisiana State University and a master’s in health informatics from the University of Missouri.  He is originally from New Orleans, Louisiana.

Panel Q&A